Autism treatment: Boyd Haley responds to FDA warning on OSR#1 supplement - latimes.com
A Kentucky scientist whose company has been selling a chemical developed for industrial purposes as a dietary supplement said Monday that the U.S. Food and Drug Administration may have been "confused" when it called his product an unapproved new drug.
The agency last month sent a letter to Boyd Haley, a popular figure in the autism recovery movement, warning him that sales of his product, OSR#1, violate federal law. Some parents and physicians have embraced OSR#1 as a treatment for children with autism.
In an op-ed piece published Monday in the Lexington Herald-Leader, Haley wrote that his product's complex chemical name, N1,N3-bis (2-mercaptoethyl)-isophthalamide, may have misled the FDA.
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Tuesday, July 27, 2010
Thursday, July 8, 2010
Riding the Wave of Autism
Riding the Wave of Autism (Surf Camp for Autism)
The Camp
The surf camp is sponsored by several local organizations and staffed by volunteers.
On this day, the waves were like baby bear’s porridge, just right for newbies to the world of hanging ten. We didn’t need those ten footers for this day’s adventure.
Leslie Weed, the founder of HEAL (Healing Every Autistic Life), and the primary sponsor for the surf camp explains: “They really crave the water. The water organizes their system, it’s relaxing to them, and the ocean is a phenomenal place to be for children with autism. It’s God’s sedative. Tt has a relaxing effect on them. It has a rhythm, and it frees their spirit. All day long they are being told where to be. They are locked in their houses, caged in their back yards. What happens here, they learn something. It does not become the desire of the instructor, it becomes the desire of the child.”
I couldn’t capture the experience in my short video, but standing there looking at the kids’ smiling faces with a joy, almost matched by the smiling faces of the volunteers that were working with the children, was like a beautiful wave washing over me. I felt blessed and grateful to witness this moment of the good in humanity. As I was standing next to one of the surf shop owners that sponsors the camp, we looked at each other grinning and both said, almost simultaneously, “What a great thing!”
If you have or know a child with autism, know that there is hope, and that there are recourses available and people that deeply care and want to help. After all, we don’t want any gnarly backdoor bomb to drill our goofy footed gremmie. We want them to have a stoked, tubular surfing life, dude!
Saturday, June 19, 2010
Dude! Skateboarding Autism Therapy
A perfect fit : Skateboarding's therapeutic effects on children with autism (ESPN)Skateboarding saves lives. That statement has been repeated millions of times because it's plain and true. Whether it serves as an escape from a life of drugs and violence, sanctuary from a rough home life or means of overcoming poverty, skateboarding constantly finds ways to make people's lives better.
And the most beautiful thing about skateboarders that have been saved? They pay it forward. Off the top of my head I can think of dozens of examples of skaters giving back: just to name a few there's Skatepark of Tampa's Boards For Bros program giving underprivileged kids skateboards, Etnies donating thousands of shoes to Downtown LA homeless and Deluxe Distribution donating proceeds from decks designed for special causes in their Actions REALized series.
One cause Deluxe recently championed is treatment for autism. Last year Deluxe's Jim Thiebaud teamed up with long-time Eastern Skateboard Supply sales representative, John Pike. "When it becomes personal is when I get drawn in," says Deluxe's Brand Manager, Jim Thiebaud. And it got personal real quick.
John Pike is 41, been skating for 30 years. His son, Gianni, age 7, has the spectrum disorder autism. "He wasn't developing like a typical kid, he wasn't speaking when he was diagnosed at age 2," said Pike. "We had a pediatrician that didn't blow us off because a lot of pediatricians will be like, "He's a boy, and he's just developing late. Don't worry about it." She put up a red flag and got the help we needed."
"Speaking with Pike about his son a year or so ago really gave me a sense of what kids with autism go through and lending a hand was easy," says Thiebaud. Real issued an Action's REAlized deck for autism and sold over 1,000 of them raising $9,000 for Autism Speaks, a non-profit dedicated to autism awareness and funding research into the causes, prevention, treatment and eventual cure for autism.
MORE / COMPLETE ARTICLE AT ESPN ... A perfect fit : Skateboarding's therapeutic effects on children with autism
Wednesday, June 16, 2010
Autism, Genetic Causes, and Possible Future Treatments ...
This article felt the need to debunk vaccines and is attracting a lot neuro-diverse comments, but given that my daughter has seizures, I am very interesting in anything related to synapses.
New Research Sheds Light on Autism’s Genetic Causes
New Research Sheds Light on Autism’s Genetic Causes
Autism remains one of the most poorly understood and troubling developmental disorders of modern medicine. But the genetic revolution could turn that around. Recent research by the groundbreaking Autism Genome Project has identified key mutations and susceptibility genes involved in the disorder. Down the road, this could pave the way for new treatments.
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The AGP study also identified four susceptibility genes involved in cellular proliferation, synapse development, and signaling between neurons ...More .... New Research Sheds Light on Autism’s Genetic Causes
Monday, June 14, 2010
Tuesday, June 1, 2010
The Robin Hood Lego Campaign for Autism
The Robin Hood Lego Campaign
Why The Robin Hood Lego Campaign was started:
Legos have always been one of my favorite toys. Currently, there are no 'Robin Hood' themed brick sets produced by LEGO. Other popular films have been 'bricked': Indiana Jones, Star Wars, Prince of Persia, Toy Story. Why not 'Robin Hood'?
In 1987, a LEGO set called 'Forestmen' was introduced as part of the Castle series. The sets were similar in character and design to Robin Hood. However, the 'Forestmen' sets were discontinued in 1990.
Autism and The Robin Hood Lego Campaign:
My 12-year-old son, Matthew, was diagnosed with Autism in 2004 when he was 6. He shows little interest in toys. He enjoys toys/activities that he can control, make repetitive, and organize. This is true for LEGO bricks. Finding activities that stimulate his imagination and encourage him to play, greatly reduces the autism-related stress that is part of his everyday life.
The Robin Hood Lego Campaign Website
Monday, May 31, 2010
Yoga for Autism
Yoga: flexible fun for autistic childrenBy For The Times
PLAINSBORO - Nicole Calvano, smiling serenely and exuding limitless patience, sat the small gathering of children and parents in a circle.
Calvano, 28, of East Brunswick, yoga instructor and passionate advocate for children suffering autism in its seemingly infinite manifestations, waved her hand around the circle and invited everyone to imagine a garden.
The children, each afflicted with some behavioral challenge, and their parents closed their eyes. The class was midway through a six-week program Calvano is teaching at the Center for Relaxation and Healing of Plainsboro.
Yoga instructor Nicole Calvano photographed at her home in East Brunswick.
[MORE ... FULL ARTICLE]
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